The provisions of the Data Protection Regulation and the Patient Data Act
The personal data officer for SIR is the regional board of Region Uppsala. By law, patients have the right to be informed that data is being registered in quality registers and how the data is used. Patients also have the right to obtain extracts from the register containing the information that has been registered, free of charge, and the opportunity to object to the registration.
SIR encourages all members to provide detailed information in their departments about their participation in SIR. Examples of appropriate information that can be used in the departments are provided on the right side of this page. Please note that information must be provided to patients during their care and must be in writing. Posters or verbal information alone are not sufficient.
For those who contact SIR via the internet - Information about the processing of personal data
When you register, ask questions, or contact us via our internet solutions, the personal data you submit will be listed in a database register at The Swedish Intensive Care Registry. The registered data is necessary for us to be able to administer meetings, send responses, and manage contact information for our members. The data will be stored by us for our follow-up work and may be used for renewed contact.
We never share contact details with third parties. If SIR assesses that information from third parties is of value to our members, or others whose contact details we have, we will forward such information without giving access to the contact details outside SIR.
We are obliged to correct, block, and, if you request, delete data at your request.
Information about the processing of personal data is provided by The Swedish Intensive Care Registry through the registry authority Region Uppsala, which bears the central responsibility for personal data.
Requests for data extracts should be sent to:
The Swedish Intensive Care Registry
sir@icuregswe.org
Information concerning the quality register
The Swedish Association of Local Authorities and Regions (SKR) provides information on and publishes the national quality register at www.kvalitetsregister.se
IMY - Swedish Authority for Privacy Protection
IMY’s role is to uphold the protection of personal data, monitoring that they are handled correctly and do not fall into the wrong hands. Read more www.imy.se/en/