Register data for research

The R & D group processes the applications submitted to SIR, follows up on presentations of research that includes SIR data and publishes them on the website.

Processing times for applications

See information at the bottom of the page

Extended application types B and C

Mandatory documents needed for the application to be complete:

  • A - Application form
  • B - Ethical review application - including annexes, with signature
  • C - Decision of the Ethical Review Authority
  • G - Project plan - description of the study
  • H - Variable list - list of desired variables
  •  J - Curriculum vitae of applicants

The above documents, together with the application, form the basis for a review prior to disclosure. The application is processed when all documentation has been received by the Swedish Intensive Care Registry.

Instruction:

  1. The application (A) must be completed in all current fields. Only reference to other documents is withheld
  2. The documents must be named as above with each letter first e.g.: C-Decision from the Ethical Review Authority. If more documents for the same letter, feel free to merge into one document.
  3. Initially, do not attach any more documents than the above. Supplement at any request from us.
  4. Our variables are described in the RUT metadata tool

For further guidance on data collection for research purposes see:

Guidance and information on the disclosure of quality register data for research

http://www.kvalitetsregister.se

Information about the processing times for applications for data extraction in The Swedish Intensive Care Registry

During the ongoing pandemic, the Swedish Intensive Care Registry has received a large number of applications for data extraction from operations, authorities and researchers. 

 

Our organization has not been designed for operations to this extent and now waiting times in case management have increased significantly. Based on the quality register's mandate, we have to set priorities in the Rules of Procedure.

 

The improvement work of the member departments, other projects related to intensive care and the authorities' need for intensive care data will now take precedence. Data sockets for other purposes will have to stand back until we catch up.

 

The Swedish Intensive Care Registry works continuously with the application process and wishes applicants to relate to waiting times.