How to inform patients about registration in quality registers

The new General Data Protection Regulation has been in force since 25 May, 2018

The new act GDPR (General Data Protection Regulation) tightens the requirements on information that patients need to receive before their data is entered into quality registers. Before any data about a patient is entered into a quality register, the caregiver should inform the patient about it. The healthcare units that already have working procedures for informing patients about registration will continue as before. If it is not possible to provide the information before registration begins, it must be provided as soon as possible.

The Swedish Intensive Care Registry has produced new written information for patients about what information is recorded, and what your rights as a patient are. Using this new patient information available for download from the website complies with the information requirement.