How to inform patients about registration in quality registers

The General Data Protection Regulation (GDPR) applies throughout the EU and aims to create a uniform and equal level of protection of personal data.

GDPR  tightens the requirements on information that patients need to receive before their data is entered into quality registers. Before any data about a patient is entered into a quality register, the caregiver should inform the patient about it. The healthcare units that already have working procedures for informing patients about registration will continue as before. If it is not possible to provide the information before registration begins, it must be provided as soon as possible.

The Swedish Intensive Care Registry has produced new written information for patients about what information is recorded, and what your rights as a patient are. Using this new patient information available for download from the website complies with the information requirement. The documents can be found at the bottom of this page.

Updated templates for patients from national quality registers can be downloaded here. They are also translated into four languages; Arabic, English, Persian and Somali. There is also a new template for posters to use in treatment or waiting rooms as well as information in easy-to-read Swedish.