It is an important legal requirement that each patient receives information before registering in a National Quality Register. The information shall be clear and immaterialised.
If it is not possible to provide the information before registration begins, it shall be submitted as soon as possible.
The Swedish Intensive Care Registry has produced written information for patients about what is being registered and what rights they have as a patient. If you use this patient information that is available for download from the website, you fulfil the obligation to provide information. All templates are located in Word, so they can be easily customized based on local conditions.
More information and templates in more languages can be found on the National Quality Register website.