Patient-related outcome measurements are a measure of how individual patients experience their illness and health. Health-related quality of life and functional capacity form part of these measurements
Patient-related outcome measures PROM
(Patient-Reported Outcome Measures)
The generic instrument RAND-36 comprises eight domains: physical function (PF), role functioning physical cause (RP), role functioning emotional cause (RE), social functioning (SF), mental health (MH), vitality (VT), pain (BP), and general health (GH). These are used to measure health-related quality of life. Measurement of functional capacity is accomplished via questions related to activities of daily living (ADL). SIR's guidelines for monitoring of patients following intensive care recommend that patients who have undergone a hospital stay of 96 hours or more be monitored on three occasions 2, 6 and 12 months after discharge from the ICU. In connection with monitoring, the patient can access the individual results of measurements and on that basis receive support and advice concerning treatment. There is also the facility for SIR's website itself to provide data reported by intensive care units in Sweden. The data that is available is gender and age, RAND-36, functional capacity (ADL) and the treatment provided to the patients who are monitored. The data is presented at group level, but you can make individual selections to obtain more specific reports. The report PostIVA Monitoring reported results from the PROM.
The summary of the 2016 annual report indicates that recuperation in terms of health-related quality of life and functional capacity did not change significantly between 2010 and 2015. The greatest improvement was seen between 2 and 6 months, which may indicate that only a certain section of patients require continued monitoring after 6 months. Given that there is a significant drop-out of patients, this could potentially influence the outcome.
Nursing is a key element of patient care. Several quality registers lack variables that measure the quality of nursing care. As such there is a need to develop quality variables within nursing care. SIR has appointed a project team which is working on this.